Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
A Story From PKU History: “When Are You Going To Treat My Child?”
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in […]
Rare Disease Day 2024
On February 29, 2024—Rare Disease Day—I appeared on local media to discuss Rare Disease Day. Here is the video of […]
Join me, Kevin Alexander, as I share my rare disease story, living with Phenylketonuria (PKU), and the lessons I’ve learned […]
Your Story Matters
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember […]
The Power of Small Decisions
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The […]
Looking Back, Looking Ahead
Today, I’m reflecting on 2023. But also looking ahead to 2024, and what’s in store for life, advocacy, and my […]
People are Priceless – A Reflection on Grief During the Holidays
This episode is a reflection on grief during the holidays. Sometimes these reflections on life that I share aren’t really […]
This PKU Awareness Day I’m exploring the beauty of uniqueness and the profound impact we can have by daring to […]
The PKU community is one global community. That’s something I feel very deeply after the 2023 ESPKU Conference. This final […]
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.